“You need to accept your diagnosis”: What accepting your diagnosis can look like

Dr. Aurelie Lucette • Aug 25, 2020

“You need to accept your diagnosis.” If you (or a loved one) live with a medical condition, you’ve probably heard that from a family member, a friend, someone on your medical team, or even a stranger on social media. 

 

Yes, acceptance of one’s illness is a meaningful goal to work towards. Ultimately, acceptance can lift some of the suffering that comes with living with an illness. 



But being told to accept a diagnosis that is challenging every aspect of your life can sometimes be perceived as dismissive and invalidating. Why is that? Acceptance is often misconstrued as many things that it is NOT, which can lead to unrealistic expectations and tough emotions to navigate.

What acceptance does not sound like:


  • What’s the point, there’s nothing that can be done for me.” 
  • “I give up on trying to get better”
  • “I can’t win the battle against chronic pain, I give up.”
  • “Whatever happens happens,”
  • “It’s totally fine, everything will be okay.”



What acceptance can sound like:


  • Some days are hard. Some are better. I take things one day at a time.”
  • “Chronic pain will most likely always be a part of my life. And I still plan on finding joy through it.”
  • “I’ve learned to shift my priorities since being diagnosed.”
  • “I don’t like being ill. But I’m learning to enjoy the good days.”



Let's take a closer look at what acceptance is (and is NOT).



  • Acceptance is NOT giving up 

 

Acceptance doesn’t mean giving up on feeling better or finding new resources (internal and external) to cope with your symptoms. 



INSTEAD:  Acceptance means recognizing that things are a certain way in the here and now (e.g., your body hurts, you’re feeling exhausted, you may be worried or sad) and having hope that you may be able to change some aspects of your experience or influence the way your diagnosis impacts your life.

 

Acceptance is making space for the symptoms that you cannot change in this moment, the losses you've experienced, and feeling empowered to continue taking small actions that are: 1) under your control (e.g., learning new ways to manage your stress, reaching out for support, finding a doctor that makes you feel listened to), and 2) consistent with your values.

 

  • Acceptance is NOT wearing rose-colored glasses at all times

 

INSTEAD: Acceptance is acknowledging that there is uncertainty attached to your diagnosis (and to life in general!) It’s knowing that you cannot control or anticipate the future and still holding hope that your experience won’t always feel as heavy.



  • Acceptance is NOT the same as liking or wanting a situation

Oh  this one is so important! 


INSTEAD: You can accept the fact that you have cancer or live with chronic pain and not like the situation. Acceptance comes with the curiosity to look at your experience the way it is now, the pain, the grief, the fear, and letting go of the need to fight this new reality with all your might. Still, you don’t have to like it one bit. 

  • Acceptance is NOT thinking that you don’t deserve anything better

INSTEAD: Acceptance also comes with the knowledge that you are not “less than” because of your illness and the limitations that may come with it. You are enough the way you are. 


  • Acceptance is NOT ignoring or dismissing your emotional or physical experiences

 

INSTEAD: Acceptance is being willing to acknowledge or even turn toward those difficult experiences, rather than running away from them. 

 

  • Acceptance is NOT something that happens overnight

 

Acceptance is not as easy as turning on a switch once and for all.

 

INSTEAD: Acceptance ebbs and flows. You may be able to sit with your pain one day and resist it with all your might or try to avoid the pain in any way possible the next. There may be parts of you experience that you might find easier to accept (e.g., not being able to socialize outside of the house as much) and others that you just can’t reconcile quite yet as part of your reality (e.g., not being able to have a family or have a full-time job). 



  • Acceptance is NOT an all-or-nothing process

 

INSTEAD: Acceptance happens on a continuum. In The mindful self-compassion workbook, Kristin Neff, describes 5 stages of accepting difficult emotions, which are also relevant to accepting a challenging, and often painful, diagnosis. 

 

Resisting: “I can’t stand to feel this way. I’ll do anything to distract myself from it completely.”

Exploring: “How am I really feeling?”

Tolerating: “This isn’t comfortable but I can stand it.”

Allowing: “I can make space for these symptoms/feelings.”

Befriending: “What am I learning from feeling this way? What can I learn from living with this diagnosis.”

 

Acceptance can start with tuning into your experience in the here-and-now and observing with curiosity what it looks or feels like to live with your illness and the emotional/physical symptoms that come along. Later you may be able to create more space for emotions and sensations to come and go without judging or resisting them. At times, you may find that you are able to lean into this new reality and acknowledge that you grew from it.

 

The process of acceptance is fluid. Acceptance can sound like many different things, as everyone's experience is unique and ever-changing.

In the words of Jon Kabat-Zinn in Coming to Our Senses: Healing Ourselves and the World Through Mindfulness: 


“Acceptance doesn’t, by any stretch of the imagination, mean passive resignation. Quite the opposite. It takes a huge amount of fortitude and motivation to accept what is — especially when you don’t like it — and then work wisely and effectively as best you possibly can with the circumstances you find yourself in and with the resources at your disposal, both inner and outer, to mitigate, heal, redirect, and change what can be changed.”

As you learn to live with your diagnosis, remember to practice self-compassion and extend the kindness you would offer others to yourself as well.



I am Dr. Aurelie Lucette, a clinical health psychologist who provides individual therapy in Miami and online throughout the state of Florida. I can help with issues related to anxiety, stress, sleep, and depression. I also specialize in therapy for adults living with cancer , chronic illness, chronic pain, caregiving stress.

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